IT IS OCTOBER, THE HARVEST, that great time for taking stock. Me? I’m grateful for many things, particularly the friendship and love of Margaret, my only sibling. We didn’t always see things the way we do now, and in that we missed huge chunks of each other’s lives. The reason for our separation? Our mother. The coming together? I credit time and patience and adult wisdom. And thinking about what might make a good harvest tale, I’m taking a chance here, and offering one about our mother, though I know Margaret will agree that here on the blog, at least, only good comes from who she was.
Our mother’s name was Allene. She is a descendant of Ethan Allen, the Revolutionary War hero, and so her parents gave her their own form of the family name. As a child she was a tomboy. In college, she studied journalism and went on to become the Society Editor of The Long Island Star Journal, a New York daily newspaper that folded in the 1950s.
She became a wife and mother, a Girl Scout leader and a Visiting Nurse volunteer, and when my sister and I were raised, she went back to school and got a master’s degree in education and began teaching at a Montessori pre-school on the Lower East Side of Manhattan. All in all, she was lovely, but gritty.
Then, somewhere in the 1970s, my mother’s mind went to battle with something, and lost. She became forgetful, angry, hostile and incompetent. She was losing her mind in handfuls. To Alzheimer’s disease. She was barely 50 years old.
Within five years she could no longer speak or recognize my sister or me. And while we still did things together, she was always agitated and seemed uninterested in anything but watching television and smoking.
Except on Sundays, when we went to church. There, she was calm. On the last day before she went into a nursing home, I took her to church as usual.
I remember leaning my head against the side of the pew and weeping. And then I noticed that my mother was singing all the hymns. Then she said all the words of the Lord’s Prayer. This from a woman who could no longer speak my name.
Not long ago, I got involved in a project that took my mind back to those moments of refuge on Sunday mornings. Our goal was to restore the right to worship to people from whom it had been taken away.
Without meaning to do so, we bar patients from places of worship at the moment they and their family members need it most. When someone cannot sit still, or be quiet or remain continent, we discourage their presence in our churches and synagogues. We don’t want them to disrupt the ceremony and the spiritual solitude.
So one autumn a few years ago, a bunch of us in Troy, New York, put together a service for people like my mother, around the time and theme of the harvest. We wanted to celebrate what we had, as opposed to focusing on what we had lost to the illness. Our group included a rabbi, an Episcopal priest and a Presbyterian minister. The service intermingled the themes of Sukkot from the Jewish tradition with Christianity’s harvest hymns and prayers. We invited patients and their caregivers. I wrote a prayer for the caregivers and one for the patients. We convinced the priest to keep his sermon under five minutes, we used a lot of music, and we encouraged walking around throughout the service.
When it came to the traditional offertory, baskets of apples were circulated; instead of collecting money, we hoped to give something to the patients and their families.
From patient to patient, I carried a huge African basket filled with apples. One very ill woman was furled in a wheelchair, her head slumped on her chest, her hands tightened into the gnarls we associate with the very last days of life. Her caregiver shook her head, indicating that the woman would not be able to hear or understand me. But I wanted the old woman to have an apple. I got down on my knees and tried to make eye contact. It was impossible. I tried to open one of her hands, but it was like a knot. Giving up, I got up to walk to the next patient.
At that moment the offertory hymn began. The opening bars of “How Great Thou Art” sounded from the organ and my husband, an accomplished baritone, softly began the words.
The woman uncurled. She straightened up in her wheelchair. At the top of her lungs, she sang every word.
The caregiver gasped. I literally staggered back, then watched as the joy and triumph of this woman revealed itself to us. She sang from someplace that most of us thought was long gone.
As the song ended, she curled back into her chair. But we had reached her.
There, amid the losses that had been diagnosed and charted, amid the grief of a family at what had looked like the end of life, was this offering of hope, this small bounty, this plenty, this harvest tale.
(photograph from Churchill Farm)
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{ 18 comments… read them below or add one }
Thanks for sharing this story! I am always amazed at the power of music to transport us to another time and place. “How Great Thou Art” was a favorite of my Great Aunt Ruth and I always associate it with going to the church of my childhood.
I am a witness to miracles. I see them daily: at the bookstore, in my neighborhood and even in the mirror. Thank you for this beautiful story. Life can be unfurled before us from the most gentle of encouragements.
Hi, Jan. And welcome to TSP. Yes, that the same song can transport us differently back to our private places is an astonishing aspect of music. Thanks so much for bringing us your experience with this. And happy harvest time. Take stock, and please come back soon.
Hello, Stanley John. And welcome to TSP. How generous of you to remind us of the every day miracles available to us all. If only our hearts are open. Yes. “Gentle encouragements” is a wonderful phrase, and provocative. We are in your debt. Please come back soon.
What an absolutely beautiful story, Marion.
Hello, Danielle. Thank you. I am grateful for your comment, and honored to have it. A nod and a bow to your kindness. Please come back soon. We love to hear from you.
Thank you, Marion. I love the apple time and the colors. Now apples will be a great reminder of what is truly “great”. So much to be thankful for.
So beautiful. As my own mom nears 91, faculties and mobility intact, it reminds me how lucky we are. And to appreciate and have faith in those “mysterious ways” we never know when or how will be revealed.
Ah, sister Maureen. Yes, the greatness of the apple is worth some further meditation, it is. So grateful for your appreciation of the tale, the apple, the sisterhood here. Love hearing from you. Come back soon.
Hello, Christine: So lovely to read you here again. Glad, so glad to hear about a marvelous woman, intact at 91 and loved and appreciated by her daughter. Wonderful. We do need to have faith in the many mysteries, don’t we? Ah, yes. Please do come back soon.
Tears in my eyes, yet again, Marion. Thank you. I love the whole story, but in particular, your reminder about the need for inclusion in worship. Though I am a non-believer, I used to attend church when I was in my 20s, and living in New York City. I loved the space, and the incredibly erudite minister, and the time for reflection, and oh, the music. In any case, I vividly remember a Sunday when a disheveled homeless man strolled into the fancy 5th Avenue sanctuary. He was not especially disruptive, but he was not composed either…and some of the parishioners began agitating (quietly–it was church, after all) for his removal. He stayed, but it was uncomfortable and awkward, and I remember feeling horrified that others wanted to kick him out. What a gift to create a service that is truly inclusive.
Oh, Sister Paige, thank you. And what a vibrant image you provide in just what can be wrong when worship becomes exclusive. Yes, yes. One of the countless wonderful gifts of life is to live long enough to put into practice ideas that got planted earlier on; I was very fortunate to be asked, years after that that dreadful day in church with my mother, what project I’d undertake if I could be funded to do anything in the Alzheimer’s field . That was it. Thanks again for reading along.
Marion, what a radiant story–full of implications not only for people with dementia and their caregivers, but for anyone who values the shared rituals that music provides. You remind me why I wish I could sing, why I love to chime in to the best of my limited ability as hymns are sung at funerals, and why my singer friends are so passionate about their pursuit. (And by the way, I thought the image of your trying to unfurl those gnarled hands was just lovely.)
Hello, Rona: And welcome back, sister. We’re delighted to read you here again. Thank you for the kind words, as well as for the understanding that this applies to us all, since music has the remarkable ability to reach everyone. It is among the greater gifts, isn’t it? We hope to see you back here soon again at TSP.
First – thank you for sharing your gifts in so many ways. This shining a light through the broken places in your beautiful life, reaching out to include those who are more easily relegated out of our sight (and caring), and finally bringing us gently along with you by your powerful retelling of these stories, is simultaneously a gesture of trust and an honor of disclosure.
Your memory has triggered mine in a way to provide something I needed to face this day. Story, as well as music, has that power to reach everyone in its own way. I sincerely appreciate your generosity in sharing your stories here.
Dear friend TexasDeb: I am honored to receive such a kind thanks, grateful to have it, and deeply moved by your ability to find in my tale something that moves you in yours. How wonderful. How astonishing. How sisterly. I look forward to reading you here again soon.
Some of these posts have built up in my reader. I had a chance today to catch up. This one touched me as I remember how my great Aunt Ruth loved ‘How Great Thou Art’. I had to comment.
Then I saw Jan beat me to it. She’s my sister. You’ve seen her in our matchy matchy clothes…
We do not live in the same state now, but I know we shared the same feelings reading this, went back to the same place, to the same church in our little hometown.
Hi, Becky. And welcome back to TSP, where we love hearing from you and your sister. Yes, your matchy-match clothes amazed and thrilled us. I love the fact that both you and you sister have commented on the same blog, a TSP joy, indeed. What blessing we are receiving here. How great. Please com back soon again.
Wow. I am weeping. I don’t know where to begin. Your mother was my age when she began her decline. How tragic. How wonderful to bring worship to the shut-in like that, brilliant. My adorable mother plays “How Great Thou Art” really well, wish you could hear it…
Hello again, Karen. Welcome back, and thank you for the appreciation of the tale. I live that your mom can play it really well. That’s wonderful. Thank you for sharing that. It’s another delight for which to be thankful in this harvest time. Please come back soon.